Monday, June 21, 2010

Winner , Wrist Cuffs & Collaboration!

Drum roll please...we have a winner!  =)

Congrats to Diane Ballou, the 6th entry of the giveaway!!  Please email your address to: to claim your custom quilted "Optical Delusion" wallet!  =)

She shared these comments with us:

I have had Lyme disease since 2001. I was on a camping weekend in Durham, NC when I was infected. I got the bullseye rash. Then my hands began to swell and become extremely painful. I was very lucky, after 5 months of not finding anyone to treat me, I found a wonderful Lyme Doctor. I was in treatment for only 1 year before I went into remission. I was in remission for almost 7 years when I had a major spinal surgery and with my body being under so much stress, the remission was gone and I am now in full blown active chronic Lyme. My first symptoms were the bullseye rash, followed by swollen, painful hands.
Thanks to everyone who participated & shared their story with us.  I think it is really important for everyone to know what the early symptoms are so they can get treated right away...after the first 30 days, you're looking at a long term chronic infection, the kind that the IDSA says doesn't exist, but is rather "the aches and pains of daily living."  Those in the Lyme community, the actual patients (like those who commented on my blog) & the Lyme Literate Medical Doctors (LLMD) don't agree with the IDSA...and neither do I.

Why would the IDSA say that???  Good's the question I had when I started to dig around the Internet & find out about this strange disease that had taken hold of my dad, years after infection & well into treatment.  Why would the IDSA say that there is no such thing as "Chronic Lyme Disease?"  

I believe it is because of money, plain & simple.  The Lyme documentary, "Under Our Skin" exposes the epidemic of Lyme and the politics that surround it.  It is a shameful thing.  Because of the way the IDSA wrote up the "guidelines" for treatment, it allows the insurance companies to DENY treatment.  After all, you can treat a disease that doesn't exist!  But to the Lyme patients out there, the pain & suffering is undeniable, with or without your insurance company's'll do anything, spend any amount of money in the hopes of regaining your health.

As a craftivist, I want to use my talents & abilities to reach out & help others.  I joined forces with the Lymenaide team, who share the same passion for awareness & activism that I do.  I am designing & sewing up a series of Lyme inspired wrist cuffs & other sewn items for Lymenaide, The Vampire Diaries & more.

I am seeking out others to help me with a project that has really touched my heart.  Elizabeth Chalker is a single woman who lives in Florida.  Due to years of misdiagnosis, her condition has deteriorated to the point where she needs extensive specialized treatment, amounting to over $100,000 for just the first year!  She lives alone with only her dog, Symon, for companionship and weekly visits from her friend & mom, Corey Cameron.
There are no special programs that she qualifies for & has been abandoned by her friends & family.  Despite fundraising efforts, she is $45,000 away from starting her life-saving treatment.  It is my hope, that after you visit her website, you too will be touched by her story & moved to help in whatever way you can. 

Victorious For Elizabeth...a project where I'm hoping to bring crafters & "Lymies" together to use their resources to help Elizabeth Chalker get the help she needs.  Here is a sneak peek at the wrist cuffs I have been designing & sewing for her fundraiser...

I welcome donations for this project.  I am specifically looking for lots of purple prints & butterflies for Elizabeth.  Here is a little list of the types of things that I can use:
  • purple fabric
  • beads of all kinds
  • fiber...I don't have much right now & could really use it
  • thread...purple, variegated, metallic
  • trim...again, think deep purple
  • butterflies...especially looking for a transparent blue or purple variety
  • Big buttons or glass closures/beads for the wrist your buttons from old clothing!
If you'd like to donate money for me to buy supplies, that is always appreciated as well.  Fabric & material donations can be mailed to:

Victorious Vixen
P.O. Box 2404
Cypress, CA 90630

If you are crafty, creative & would like to participate in this project somehow, or if you have ideas on other ways to help, please leave a comment below or email me at:

I am really looking forward to collaborating with other artists!  =)

Sending my love & positive thoughts out to my Lyme friends & supporters...your stories continue to inspire me to push forward with the intention of creating positive change!



  1. You are doing such an honorable thing here Nani. God bless all your endeavors. I am over here in Florida doing what I can to help Elizabeth from a distance. Janulee

  2. You are an angel Nani - a rare gem! Thank you for your beautiful heart. Elizabeth deserves this blessing from you!Love, Helen

  3. Thanks for the love guys! I feel very passionate about helping Elizabeth & the Lyme community as a whole. The suffering that she & countless others go through on a daily basis is unimaginable...and could have been prevented with education, awareness, early detection & treatment!

  4. Nani,

    Your heart for Elizabeth and others suffering astounds me! how I pray that the world would follow your lead in loving, serving, caring. Elizabeth and I are both very touched and grateful by your efforts to help, your obvious talent, and your genuine nature...

    Many Blessings to you and your family,
    Corey, Elizabeth and Symon


I love your comments...tell me what you think! =)